Triple I sponsors several pilot projects that rapidly address specific areas of concern for people on hemodialysis.
PiKS (Patient interest in Kidney Services)
PiKS is a patient, family and supporter interest group aimed at helping people live well with hemodialysis. PiKS is a network and supportive forum through which the dialysis community can work together for action and improvement. As a participatory action research pilot, the PiKS steering committee focuses on helping hemodialysis patients manage fatigue and improving the information people receive when starting dialysis. PiKS has held two open forums for patients to share their experience and knowledge on thriving on dialysis with other patients. The group has published A Patient’s Guide to Starting Dialysis, and is in the final stages of editing a related video.
Voice-HD is a web application (app) created to enhance communication between dialysis patients and their kidney doctors. In this research study, the Voice-HD app was developed for patients who receive hemodialysis treatments at out-patient dialysis units. The aim of the study is to evaluate the benefits of using the app to improve the quality of interaction between hemodialysis patients and their kidney doctors. Through the use of the web app, patients are able to prioritize their health concerns, request medications and schedule a private conversation with their kidney doctor.
Ottawa Pilot Project
This web-application (app) study is intended to help doctors and dialysis patients with abnormal heart rhythms with the decision to use blood thinners for prevention therapy. Blood thinners decrease the chance of stroke among patients with abnormal heart rhythms; however, they increase the risk of internal bleeding. Dialysis patient preferences for therapies may differ from that of the general population as dialysis patients often have multiple health conditions to consider. There are currently no formal tools to assist care-providers and patients determine acceptable ratios of risk/benefit regarding blood thinners. Exploring acceptable risk/benefit ratios will further our knowledge, future research and aid doctor and patient decision-making. This project will examine patient and doctor preferences regarding taking blood thinners for stroke prevention in dialysis patients with abnormal heart rhythms using a new app that assesses differing scenarios of risks and benefits.